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Hi, I'm Brian A.

I need Someone who understands this blood disorder. I have been diagnosed for 5 years, hospitalized 4 times, and still the Hospital refused to acknowledge this disorder and treat it. I am learning by trial and error. Error usually results in a 7 to 13 day hospital stay while they try to diagnose and treat COPD. According to my research, treatment by Methyl Blue IV should cut the hospital stay down to 24 hours or so. My Hemotologist has apparently never seen a patient with this disorder. SO… Does anyone have any experience they can share?… Brian

  • Post #1
  • Wed Jun 3, 2020

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