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CMML-1

I'm Ramon, and I'm a survivor of Leukemia

05/02/2020

  • Post #1
  • Sat May 2, 2020
I'm Ramon, and I'm a survivor of Leukemia

I am a 74 years old with CMML-1 since 2017 currently my white cells
Are up to 75 but my hemoglobin and platelets are in excellent condition. No medicines or treatments so far. The only problems I have are chills and ants running my entire body, told my doctor and he does not prescribe anything. Do you know of any medicine to stop
These?

  • Post #2
  • Sat May 2, 2020
pcs
pcs
Hi, I'm pcs
pcs

What treatment are you on?

  • Post #3
  • Wed Jun 24, 2020
Kay
Kay
I'm Kay, and I'm a survivor of Leukemia
Kay

I am 68 year old female with CMML-0 diagnosed 5months ago. I currently have no symptoms, except fatigue. My CMML is characterized by high monocytes and low platelets. I mention this because I am aware that even within the relatively small number of people with CMML, there are subgroups of those with MDS characteristics (me) and others with MPN characteristics. It would appear the two subgroups have different symptoms and different pathways to navigate. So far I have been unable to connect with anyone with my version of CMML. I feel starved for information about symptoms and timelines. If anyone out there has similar concerns, perhaps we can support each other.

  • Post #4
  • Sun Aug 23, 2020
Hi, I'm Thriver

Sorry. What is cmml-0?

  • Post #5
  • Tue Oct 20, 2020

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